WELCOME TO
the NICU ALUMNI resource library
Unhealed Scars: The Unexpected Trauma Following NICU Discharge—And How I Overcame It
So, there we were, about to leave the NICU for the very last time. With one hand, my husband pushed our double stroller, two twins nestled inside. This was the first time my twin boys, Lochlan and Lex, had ever been out of their hospital room together…
Nurturing Hope: The Vital Role of Post-NICU Care
When your baby graduates from the NICU, a new phase for your family begins: post-NICU care. It’s exciting to bring your baby home (congrats!) but we know it can also feel overwhelming to manage their important medical appointments, therapies, medications and more…
25 | A Conversation with Jennifer Degl, Author, Speaker, Maternal & Neonatal Health Advocate
Jennifer described coming home from the NICU with one word: Scary. We wish this weren’t be the case but it happens all the time!
Transitioning Home from the NICU
You’re finally home! Now what?
There’s a good reason that phrase is at the forefront of NICU Alumni’s content: Because while bringing your baby home from the NICU is an exciting milestone, it can also feel overwhelming and hard to know what to do next.
10 Self-Care Tips for Parents of NICU Grads
Having trouble making time for yourself? We have some ideas to get you started.
What Is a Developmental Pediatrician? 11 Qualities to Look For in Your Child’s Doctor
Developmental Pediatricians are doctors specially trained to help NICU grads and children with disabilities thrive.
Early Intervention 101
Now that your child has graduated from the NICU, and is an official #NICUalumni, we wanted to talk to you a little bit about Early Intervention!
11 | CEO of Hand to Hold, Kelli Kelley
Hand to Hold is dedicated to providing emotional support, education, and community to parents who have had a child in the NICU or have experienced the loss of a baby in the NICU.
05 | Dietician for Children Ages 0-3, Deb Malkoff-Cohen
Deb Malkoff-Cohen, a seasoned Registered Dietitian and Certified Diabetes Educator, brings her expertise in pediatric nutrition to families by innovatively spooning nutritional wisdom into young bellies, emphasizing the importance of healthy transitions from the NICU.
helpful links
NICU Alumni is proud to serve NICU grads and their families—and we’re not alone. There are amazing groups and organizations that can also support you while you’re still in the NICU, during your transition home, and into the future.
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CDC: What Is Early Intervention?
Early Intervention Contact Info by State (CDC)
Learn the Signs. Act Early. (CDC)
Pathways.org - a valuable resource offering free materials to help you understand developmental milestones and age-appropriate activities.
Jack’s Basket - support for new diagnosis of Down syndrome
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The Individuals with Disabilities Education Act (IDEA)
How to Find a Special Education Advocate
The ARC - supporting people with intellectual and developmental disabilities and actively supporting their full inclusion.
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Academy of Special Needs Planners
Florida Family-Related Medicaid Program Fact Sheet
Act4Me - Grants for therapy in Miami-Dade and Broward County
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Florida Alliance for Assistive Services and Technology (FAAST)
Me Two Books - This blog contains book reviews and activities for the family.
our network of support