WELCOME TO
the NICU ALUMNI resource library
49 | Your NICU Story: A Guide for Reflecting on Your Family’s Experience
Use storytelling to help honor your NICU journey, navigate the ups and downs, process, and heal.
48 | From Discharge to Home: Insights for Providers and Families - Part 2
A glimpse into the parent perspective of navigating life after the NICU.
47 | From Discharge to Home: Insights for Providers and Families - Part 1
Get an inside look at how providers can reshape NICU discharge planning to better prepare families for the journey home.
46 | While I Breathe: Susan Reynolds on Parenting, Loss, and Advocacy After the NICU
Parenting, loss, and advocacy after the NICU.
45 | Week 26: Jennifer Bernardo’s NICU Journey and Life After
Jennifer shares her experience after welcoming twins at 26 weeks.
44 | Learning to Be a Medical Family and Life After the NICU with Dr. Jessica Allen
Honest insight into life after discharge and what it means to grow into a medical family.
43 | Healing Through Story: Jen Mansfield on Grief After the NICU
Jen shares how storytelling and community support helped her navigate grief after losing her son who was born at 24 weeks.
42 | Honoring a Legacy: Advocacy and Support After the NICU with Misti Staley
In honor of Tube Feeding Awareness Week, we’re thrilled to share our latest episode featuring Misti Staley, founder of FreeArm and advocate for NICU and PICU families.
helpful links
NICU Alumni is proud to serve NICU grads and their families—and we’re not alone. There are amazing groups and organizations that can also support you while you’re still in the NICU, during your transition home, and into the future.
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CDC: What Is Early Intervention?
Early Intervention Contact Info by State (CDC)
Jack’s Basket - support for new diagnosis of Down syndrome
Learn the Signs. Act Early. (CDC)
Pathways.org - a valuable resource offering free materials to help you understand developmental milestones and age-appropriate activities.
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The ARC - supporting people with intellectual and developmental disabilities and actively supporting their full inclusion.
Family Café - Conference
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Academy of Special Needs Planners
Act4Me - Grants for therapy in Miami-Dade and Broward County
Support Now - Rally real support during and after the NICU.
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Home Heart Florida - helps families of medically fragile children (up to age 21) in Florida who require a private duty nurse each day become certified as an Aide for Medically Fragile Children and get paid for up to 8 hours of private duty nursing care per day. They also assist with registration and required training.
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FreeArm - Tube Feeding Assistant
Me Two Books - This blog contains book reviews and activities for the family.
Toy Recommendations by Lemon City Collective
Zaky HUG - Ergonomic support device designed to provide comfort, security, and better sleep to your baby as it mimics the warmth and scent of a caregiver’s touch.
our network of support
