46 | While I Breathe: Susan Reynolds on Parenting, Loss, and Advocacy After the NICU
EPISODE 46
In this episode of the NICU Alumni Podcast, we speak with Susan Reynolds, author of While I Breathe, about her journey as a NICU mom to her son Ryan, who was born prematurely and diagnosed with Down syndrome.
Susan reflects on the lasting impact of their NICU experience and how Ryan’s life and his passing continue to shape her purpose and advocacy. Drawing from her background in pediatric medicine and bioethics, she shares meaningful insights on family-centered care, the power of advocacy, and the ways she honors Ryan’s legacy through education and storytelling.
Quick Notes from the Episode:
Going home with medical equipment can feel overwhelming — support matters.
NICU grads are at higher risk of readmission; adjusting to a new team in the PICU can be an added stressor.
Many hospitals have a bioethics team to help families and providers navigate tough decisions when opinions differ.
Processing your NICU experience may involve talking with a trusted loved one or therapist.
Learning more about your baby’s medical conditions and treatments can be empowering, especially when you feel ready to take in that information.
Susan’s book: While I Breathe
Resources mentioned:
Connect with Susan via Instagram: @susanreynolds28, or her Website: susanmreynolds.com
SPECIAL THANKS:
A special thanks to the Prolacta Bioscience Foundation for supporting the NICU Alumni podcast!
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The purpose of this podcast is for entertainment only and should not be viewed as medical advice.